Welcome to the EFNR Patient Information page. We know it is not always easy to find useful and clear information about NeuroRehabilitation, and we know patients often have questions about procedures and latest research. This is why we decided to set up a special group to improve our patient information resources and this page to explain this process. Below, you will find an overview of our aims, and on the left-hand side you will find useful links to relevant resources we already provide for you.
The EFNR is taking an increasing interest in the needs and interests of patients. That is why we began taking our communication with patient groups to another level, and at the federation’s congress, the European Congress of NeuroRehabiliation Public Access Day was launched.
The goal of the Patient Information Task Force is to bring together patients, the public and medical professionals in order to positively influence advances in the field of NeuroRehabilitation to the benefit of patients all over Europe.
The core aims of the group include the following:
- Improve communication with patients
- Raise awareness of medical methods amongst patients
- Improve patients’ knowledge of rehabilitation procedures
- Liaise with patient groups on policy issues of common interest
- Involve patient representatives in strategic decisions regarding NeuroRehabilitation
- Ensure a patient-centred, ‘human’ approach is embedded in the work of the EFNR
The task force regularly consults with patient representative, and the chairperson of the EFNR public policy office.